HOLLAND PATENT — Chiari Cares, a local Chiari advocacy group, will host a Chicken Riggies drive-thru fundraiser on Saturday, Nov. 7, from 3-5 p.m. at the Leon R. Roberts American Legion Post on Depot Street. The meal costs $15 and organizers are requesting exact change. Checks will also be accepted.
Chiari Malformation is a disorder affecting the bottom of the brain, putting pressure on the brain and spine causing symptoms such as headaches, neck pain, balance problems, breathing problems, numbness and weakness of limbs. To date there is no cure for Chiari. The primary treatment is a surgery to remove bone at the base of the skull, which relieves pressure on the brain.
This year’s fundraiser is dedicated to Dr. Timothy George and Susan Niedzielski, CDN, IBCLC.
Dr. George was a neurosurgeon at Duke Medical in N.C., with a focus on pediatric neurosurgery. He passed away in 2019. This year the American Syringomyelia Alliance Project, a group that advocates and funds research for people with Chiari and related Syringomyelia, dedicated their annual conference to Dr. George.
Niedzielski was an advocate for Chiari Cares. She worked for the WIC program and NYS DDSO in Rome. She was a founding member of local Breastfeeding Cafes, president of the Mohawk Valley Breastfeeding Network for 15 years, and a board member of the Mohawk Valley Perinatal Network. She passed away Sept. 19.
For more information, contact Peg Curtacci at 315-865-7498, or go online to www.facebook.com/ChiariCares.