WALK RAISES FUNDS TO BATTLE CHIARI — A local walk will be held in Rome as part of the Conquer Chiari Walk Across America event to raise funds and awareness on Saturday, Sept. 15, at Pinti Field, 200 Sixth St. Walkers from across the region will come together to help combat Chiari, a neurological disorder that affects more than 300,000 people across the country. (Photo submitted)

Local event aims to help conquer neurological disorder Chiari

Published Aug 27, 2018 at 4:00pm

There will be a Rome event for the Conquer Chiari Walk Across America on Saturday, Sept. 15, at Pinti Field, 200 Sixth St. While, the walk is held in Rome, walkers come from all over the greater CNY area.

Organizers are raising money to combat Chiari a neurological disorder that affects more than 300,000 people across the country. To date there is no cure for Chiari.

The primary treatment is a serious surgery which removes bone from the skull, to relieve pressure on the brain.

It is the sixth year for the Rome event, which typically attracts about 100 participants.

Registration is free; however, a $25 donation is suggested by organizers. Pre-registration can be done online at www.conquerchiari.org.

Registration on-site the day of the event will take place at 10 a.m. The walk will start at 11 a.m.

The walk’s distance is flexible, and can be done according to one’s fitness level, organizers noted. New this year, the walk area is now paved, making accessibility easier.

The event will include entertainment by Blues Brothers of Rome, food, activities, a play area, photography by A.J.K. There will be additional fund raiser items for sale, including a quilt by Dianne’s Sewing of Ilion.

Chiari Malformation is a disorder affecting the bottom of the brain, putting pressure on the brain and spine causing symptoms such as headaches, neck pain, balance problems, breathing problems, numbness and weakness of limbs.

Syringomyelia where a syrinx or sac of fluid damages the spinal cord and Ehlers Danlos Syndrome a connective tissue disorder are often associated with Chiari.

Central New York Chiari Walk CCWAA is on Facebook. For more information: Contact organizer Nadine Horn at 315-838-5010 or cny.ccwaa@gmail.com. or Danielle Burns at 315-863-7743 or daniellesparkels1@gmail.com

Chiari Cares of Holland Patent, a local Chiari advocacy group will be walking and welcomes walkers to join our team, or sponsor any member of CCWAA Rome, by going to www.conquerchiari.com   Chiari Cares contact, is Peg Curtacci at 315-865-7498  chiaricares2014@gmail.com or find Chiari Cares on Facebook.

New Teams are encouraged, sign up at www.conquerchiari.com